--- title: What Your TBI Survivor May Need from You as a Caregiver | Cognitive FX description: When someone you love sustains a traumatic brain injury (TBI) or concussion, your whole world can change. You are launched into a world of uncertainty about the injury, recovery, and more. 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What Your TBI Survivor May Need from You as a Loved One or Caregiver # What Your TBI Survivor May Need from You as a Loved One or Caregiver Guest Author -- Aimee Mortensen • Updated on 01 February, 2021 • Medically Reviewed by [Dr. Alina Fong](https://www.cognitivefxusa.com/blog/author/dr-alina-fong-phd) [mailto:?subject=Check%20out%20https://www.cognitivefxusa.com/blog/what-your-tbi-survivor-may-need-from-loved-one-caretaker%20&body=Check%20out%20https://www.cognitivefxusa.com/blog/what-your-tbi-survivor-may-need-from-loved-one-caretaker&media=https://info.cognitivefxusa.com/hubfs/What%20Your%20TBI%20Survivor%20May%20Need%20from%20You%20as%20a%20Loved%20One%20or%20Caregiver.png](mailto:?subject=Check%20out%20https://www.cognitivefxusa.com/blog/what-your-tbi-survivor-may-need-from-loved-one-caretaker%20&body=Check%20out%20https://www.cognitivefxusa.com/blog/what-your-tbi-survivor-may-need-from-loved-one-caretaker&media=https://info.cognitivefxusa.com/hubfs/What%20Your%20TBI%20Survivor%20May%20Need%20from%20You%20as%20a%20Loved%20One%20or%20Caregiver.png) When someone you love sustains a traumatic brain injury (TBI) or concussion, your whole world can change. You are launched into a world of uncertainty about the injury, recovery, and, perhaps, even who your loved one is anymore. So much can change after a TBI. So where do you even begin? Understanding the difficulties you may encounter can be a helpful first step in the journey. #### Every Injury is Unique Every brain is unique. Every injury is unique. Every recovery is unique. This means that each TBI survivor’s needs will be different in many ways. Because of memory loss, some TBI survivors may appreciate text reminders for appointments or events; however, others may chafe against frequent reminders because it reminds them of their lost independence. In spite of the differences between each TBI survivor, there are a few things every survivor needs from their loved ones and caregivers. They are counting on you. #### Skepticism About TBI and Concern for Recovery After the accident, you likely took your injured loved one to numerous doctors, all from various backgrounds. Many examinations, scans, tests, and therapies later, your loved one is still experiencing post-concussion symptoms. At this point, the doctors begin to say that your TBI survivor is “fine” and may need to be put on medication or see a therapist for their imagined “symptoms.” “It’s all in their head,” claim the doctors. And after hearing it numerous times, maybe you too start to wonder if the TBI survivor is just crazy. After pursuing many treatment options, and seeing little results, you question if anything will ever work. Will it ever get better? Supporting someone when you’re already struggling is a difficult challenge. Giving someone hope, especially when you yourself feel hopeless, is a daunting task. Changes to the Person You Love Change You Your loved one may live in a constant state of fear and anxiety, wondering what is the next embarrassing thing they’ll do. They can be difficult to calm or reason with. When bothered by something, or struggling, they will need tools in place to help them feel more connected with the here-and-now. You can help them do this by encouraging them to do something out of the ordinary (splash cold water on their face, do some jumping jacks, play with their hair, etc.) They may also [be in denial](https://www.cognitivefxusa.com/denial-after-brain-injury) regarding the symptoms they are experiencing, or swing from one emotion to another quicker than they did prior to their brain injury. It’s hard to know what to expect. What you are experiencing is grief. It may feel like re-injury daily. As soon as you think you have accepted this new miserable “normal” you are reminded of who they used to be and how they are no longer capable of the things of the past. Validate that is where they are. That’s okay. They are doing the best they can at that is enough. Learn [about the stages of grief](https://www.cognitivefxusa.com/grief-after-brain-injury) and what to expect through this process.  Suicidal thoughts are dangerous after a TBI. In some cases, suicide may seem like the only option. Assess for emotional health as often as you can. This is something you can do as a loved one of a survivor. Suggest they see a therapist to deal with the grief that their brain injury has caused. It would be a great idea for you to see a therapist as well. *Brain injuries can affect the entire family.* #### Those with a TBI Need You / Knowing How to Help TBI Survivor’s symptoms are frequently blown-off or ignored. You want to fight for them, but you don’t know what to do. Planners, notebooks, journals, text and email reminders . . . maybe you wonder if you’re actually helping. Are all of your efforts making things worse? Your efforts are not making things worse. **There are several additional things you can do to help your loved one after a brain injury: ** - Focus on their health. - Improve their diet, nutrition, and [sleep routine](https://www.cognitivefxusa.com/5-ways-to-improve-your-sleeping-habits). - Increase [water intake](https://www.cognitivefxusa.com/importance-of-drinking-water) and [exercise](https://www.cognitivefxusa.com/physical-exercise-and-brain-health), if allowed, and include daily Omega 3 supplements. - Help them take steps towards more activity even if it is basic activities that help increase heart rate. A common myth is to [rest and continue resting ](https://www.cognitivefxusa.com/the-just-right-challenge-when-to-rest-when-to-push-your-limits)after a brain injury. This may be helpful short term, but hasn’t been found to be beneficial to long-term healing.  Overall, this is an opportunity for you to love and support your loved one in a new way. You are amazing, their strength, and their rock. We appreciate your commitment and thank you for sticking with it. You represent recovery, healing, and hope. Improvement is possible because you are loving them, taking care of them, and not giving up on them. You make a difference for them, even when you or they are struggling to see it. --- ### About the author [Guest Author -- Aimee Mortensen](https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen) ## Related Posts ![Perspective After Brain Injury Throughout Recovery](https://www.cognitivefxusa.com/hs-fs/hubfs/Perspective%20After%20Brain%20Injury%20Throughout%20Recovery.png?height=175&name=Perspective%20After%20Brain%20Injury%20Throughout%20Recovery.png) ### Perspective After Brain Injury Throughout Recovery ![Image of Cognitive FX Team](https://www.cognitivefxusa.com/hs-fs/hubfs/Rounded-C-R.jpg?height=70&name=Rounded-C-R.jpg) [Cognitive FX Team](https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen) ### Everything Changed After My Brain Injury Past patient, Anna Empey shares her experiences in a series of blog posts including ["10 Things I Wish I had known Before my Brain Injury"](https://www.cognitivefxusa.com/10-things-know-before-concussion), ["Journaling Through...](https://www.cognitivefxusa.com/how-writing-can-help-you-during-concussion-recovery) [Read the full article ](https://www.cognitivefxusa.com/blog/perspective-after-brain-injury-throughout-recovery) ![Self-care_and_its_importance-blog](https://www.cognitivefxusa.com/hs-fs/hubfs/Self-care_and_its_importance-blog.png?height=175&name=Self-care_and_its_importance-blog.png) ### Self-Care: 5 Tips for TBI Survivors and Family Members ![Image of Ashley van Biljon](https://app.hubspot.com/settings/avatar/8eff68bdf859f5654dd23a56acd2c5f9) [Ashley van Biljon](https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen) After a brain injury, survivors and family members often describe having difficulty adjusting to life’s changes and losses. Survivors oftentimes face post-injury challenges that make can recovery... [Read the full article ](https://www.cognitivefxusa.com/blog/self-care-5-tips-for-tbi-survivors-and-family-members) ![EPIC Concussion Treatment – Aimee’s Day to Day Experience at CFX](https://www.cognitivefxusa.com/hs-fs/hubfs/EPIC%20Concussion%20Treatment%20%E2%80%93%20Aimee%E2%80%99s%20Day%20to%20Day%20Experience%20at%20CFX.png?height=175&name=EPIC%20Concussion%20Treatment%20%E2%80%93%20Aimee%E2%80%99s%20Day%20to%20Day%20Experience%20at%20CFX.png) ### EPIC Concussion Treatment – Aimee’s Day to Day Experience at CFX [Guest Author - Aimee Mortensen](https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen) Everyone’s experience is different. *Anyone experiencing a concussion or TBI has a different story, different outlook on life, and different symptoms, their experience of [EPIC Treatment](https://www.cognitivefxusa.com/blog/epic-concussion-treatment) is going to be...* [Read the full article ](https://www.cognitivefxusa.com/blog/epic-concussion-treatment-patient-experience) ![Journaling Techniques and Ideas After a Brain Injury](https://www.cognitivefxusa.com/hs-fs/hubfs/Journaling%20Techniques%20and%20Ideas%20After%20a%20Brain%20Injury.png?height=175&name=Journaling%20Techniques%20and%20Ideas%20After%20a%20Brain%20Injury.png) ### Journaling Techniques and Ideas After a Brain Injury [Guest Author - Aimee Mortensen](https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen) Journaling is one of the greatest therapeutic techniques available. Journaling is free, confidential, and convenient. It offers you the opportunity to be your own therapist. You might think... [Read the full article ](https://www.cognitivefxusa.com/blog/journaling-techniques-and-ideas-after-a-brain-injury) ![8 Fall Prevention Tips for your Grandparents](https://www.cognitivefxusa.com/hs-fs/hubfs/8%20Fall%20Prevention%20Tips%20for%20your%20Grandparents.png?height=175&name=8%20Fall%20Prevention%20Tips%20for%20your%20Grandparents.png) ### 8 Fall Prevention Tips for your Grandparents ![Image of Cognitive FX Team](https://www.cognitivefxusa.com/hs-fs/hubfs/Rounded-C-R.jpg?height=70&name=Rounded-C-R.jpg) [Cognitive FX Team](https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen) Adults 65+ years have the highest rates of traumatic brain injury (TBI) deaths, according to the [New York Department of Health](https://www.health.ny.gov/publications/0660/#fall). Regardless of your age now, we all get older, even if we don’t want to.... [Read the full article ](https://www.cognitivefxusa.com/blog/fall-prevention-tips-for-elderly) ![Patient Outcomes at Cognitive FX Based on Gender, Age, Mode of Injury, and Time Since Injury](https://www.cognitivefxusa.com/hs-fs/hubfs/Patient%20Outcomes%20at%20Cognitive%20FX%20Based%20on%20Gender%2c%20Age%2c%20Mode%20of%20Injury%2c%20and%20Time%20Since%20Injury.png?height=175&name=Patient%20Outcomes%20at%20Cognitive%20FX%20Based%20on%20Gender%2c%20Age%2c%20Mode%20of%20Injury%2c%20and%20Time%20Since%20Injury.png) ### Patient Outcomes at Cognitive FX Based on Gender, Age, Mode of Injury, and Time Since Injury ![Image of Cognitive FX Team](https://www.cognitivefxusa.com/hs-fs/hubfs/Rounded-C-R.jpg?height=70&name=Rounded-C-R.jpg) [Cognitive FX Team](https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen) On a regular basis, we’re asked if gender and/or age influence one’s ability to recover. We are also asked if how someone was injured, or how long it has been since their injury will influence their... [Read the full article ](https://www.cognitivefxusa.com/blog/patient-outcomes-at-cognitive-fx-based-on-gender-age-mode-of-injury-and-time-since-injury) #### Proven Results Improvement in 77% of Participants Published peer-reviewed research shows that Cognitive FX treatment leads to meaningful symptom reduction in post-concussion symptoms for 77% of study participants. Cognitive FX is the only PCS clinic with third-party validated treatment outcomes. 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All Rights Reserved. | [Privacy Policy](https://www.cognitivefxusa.com/blog/what-your-tbi-survivor-may-need-from-loved-one-caretaker#) ```json { "@context" : "https://schema.org", "@type" : "BlogPosting", "author" : { "@type" : "Person", "name" : "Guest Author -- Aimee Mortensen", "url" : "https://www.cognitivefxusa.com/blog/author/guest-author-aimee-mortensen" }, "dateModified" : "2021-02-01T18:03:16.457Z", "datePublished" : "2018-07-09T18:27:00.000Z", "headline" : "What Your TBI Survivor May Need from You as a Caregiver | Cognitive FX", "image" : [ "https://www.cognitivefxusa.com/hubfs/What%20Your%20TBI%20Survivor%20May%20Need%20from%20You%20as%20a%20Loved%20One%20or%20Caregiver.png" ], "mainEntityOfPage" : { "@id" : "https://www.cognitivefxusa.com/blog/what-your-tbi-survivor-may-need-from-loved-one-caretaker", "@type" : "WebPage" }, "publisher" : { "@type" : "Organization", "logo" : { "@type" : "ImageObject", "url" : "https://www.cognitivefxusa.com/hubfs/Cognitive-Final-Logo-BlBlk-Med.png" }, "name" : "Cognitive FX" } } ``` ```json { "@context" : "https://schema.org", "@type" : "Article", "about" : { "@type" : "MedicalCondition", "name" : "" }, "audience" : { "@type" : "Audience", "audienceType" : [ "patient", "caregiver" ] }, "author" : { "@type" : "Person", "affiliation" : { "@type" : "MedicalOrganization", "name" : "Cognitive FX", "url" : "https://www.cognitivefxusa.com" }, "name" : "Guest Author -- Aimee Mortensen" }, "dateModified" : "01 February, 2021", "datePublished" : "2018-07-09 18:27:00", "description" : "When someone you love sustains a traumatic brain injury (TBI) or concussion, your whole world can change. 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You are launched into a world of uncertainty about the injury, recovery, and, perhaps, even who your loved one is anymore. So much can change after a TBI. So where do you even begin? Understanding the difficulties you may encounter can be a helpful first step in the journey. Every Injury is Unique Every brain is unique. Every injury is unique. Every recovery is unique. This means that each TBI survivor’s needs will be different in many ways. Because of memory loss, some TBI survivors may appreciate text reminders for appointments or events; however, others may chafe against frequent reminders because it reminds them of their lost independence. In spite of the differences between each TBI survivor, there are a few things every survivor needs from their loved ones and caregivers. They are counting on you. Skepticism About TBI and Concern for Recovery After the accident, you likely took your injured loved one to numerous doctors, all from various backgrounds. Many examinations, scans, tests, and therapies later, your loved one is still experiencing post-concussion symptoms. At this point, the doctors begin to say that your TBI survivor is “fine” and may need to be put on medication or see a therapist for their imagined “symptoms.” “It’s all in their head,” claim the doctors. And after hearing it numerous times, maybe you too start to wonder if the TBI survivor is just crazy. After pursuing many treatment options, and seeing little results, you question if anything will ever work. Will it ever get better? Supporting someone when you’re already struggling is a difficult challenge. Giving someone hope, especially when you yourself feel hopeless, is a daunting task. Changes to the Person You Love Change You Your loved one may live in a constant state of fear and anxiety, wondering what is the next embarrassing thing they’ll do. They can be difficult to calm or reason with. When bothered by something, or struggling, they will need tools in place to help them feel more connected with the here-and-now. You can help them do this by encouraging them to do something out of the ordinary (splash cold water on their face, do some jumping jacks, play with their hair, etc.) They may also be in denial regarding the symptoms they are experiencing, or swing from one emotion to another quicker than they did prior to their brain injury. It’s hard to know what to expect. What you are experiencing is grief. It may feel like re-injury daily. As soon as you think you have accepted this new miserable “normal” you are reminded of who they used to be and how they are no longer capable of the things of the past. Validate that is where they are. That’s okay. They are doing the best they can at that is enough. Learn about the stages of grief and what to expect through this process. Suicidal thoughts are dangerous after a TBI. In some cases, suicide may seem like the only option. Assess for emotional health as often as you can. This is something you can do as a loved one of a survivor. Suggest they see a therapist to deal with the grief that their brain injury has caused. It would be a great idea for you to see a therapist as well. Brain injuries can affect the entire family. Those with a TBI Need You / Knowing How to Help TBI Survivor’s symptoms are frequently blown-off or ignored. You want to fight for them, but you don’t know what to do. Planners, notebooks, journals, text and email reminders . . . maybe you wonder if you’re actually helping. Are all of your efforts making things worse? Your efforts are not making things worse. There are several additional things you can do to help your loved one after a brain injury: Focus on their health. Improve their diet, nutrition, and sleep routine. Increase water intake and exercise, if allowed, and include daily Omega 3 supplements. Help them take steps towards more activity even if it is basic activities that help increase heart rate. A common myth is to rest and continue resting after a brain injury. This may be helpful short term, but hasn’t been found to be beneficial to long-term healing. Overall, this is an opportunity for you to love and support your loved one in a new way. You are amazing, their strength, and their rock. We appreciate your commitment and thank you for sticking with it. You represent recovery, healing, and hope. Improvement is possible because you are loving them, taking care of them, and not giving up on them. 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