Samuel Gray spent his entire life trying to push past an invisible wall. His symptoms — things like brain fog, noise sensitivity, short-term memory loss, anxiety, and depression — made every day a challenge. And for most of the thirty-three years he suffered, he had no idea that his challenges stemmed from a childhood traumatic brain injury.
In her youth, Myrthe van Boon loved playing sports and being outside. On breaks from school, she loved going sailing or teaching others how to sail. Her favorite holiday destination was going to the mountains to hit the slopes. But that life disappeared in an instant when she fell during a skiing trip at age 22.
Everyone’s experience is different. Anyone experiencing a concussion or TBI has a different story, different outlook on life, and different symptoms, their experience of EPIC Treatment is going to be different as well. With that said, here’s my experience. I was injured 17 years before I received treatment, and you can read more about how I got my injury in another post here if you are interested. Hopefully, my story validates some of your experience, gives hope, and provides direction. To begin with, I was surprised my schedule wasn’t more packed with activities. I questioned if this would work. I received over 25 hours of treatment during the week when I was expecting a 40 hour week. By the end of the week, I appreciated that I didn’t have a 40-hour schedule because I don’t think my brain could have handled it. Day One: I walked into the office on Monday morning. I was handed the check-in questionnaire. I filled out the Post Concussion Symptom Scale (PCSS) check-in and check-out questionnaire each day of treatment. CFX uses the questionnaires to monitor symptoms throughout the week, and is used as a measurement in their research. As I sat down to complete the simple form, I started to cry. I’m not against crying, but it takes a lot to push me to tears. I wasn’t sure what was going on. I called my husband. He said a quick “Focus, give it your best, and I love you.” Then I met Porter. Porter is one of the Patient Care Coordinators and I really felt support from him while I was at Cognitive FX. I didn’t have any idea what to expect. I was nervous. He gave me a tour, and we got started. *Sometimes you might also have an fNCI on your first day. I got my first scan done before I started treatment for my brain injury.
I was in an auto accident on January 2, 2001. I received a severe TBI, broke my back, pelvis, jaw, ribs, and pretty much every bone in my body. I was grateful to be alive, but after a few years I had accepted the fact that I was going to be deficient for the rest of my life.
Past patient, Anna Empey shares her experiences in a series of blog posts including "Perspective After a Brain Injury," "10 Things I Wish I had Know Before my Brain Injury," and here in this post. When I first was recovering, I felt like I couldn’t find words to write about my experience. I couldn’t explain either written or vocally how I was feeling or what I was going through. Over time, writing became something that helped me learn how to gather my thoughts and express myself. I focused more on the act of writing something down rather than if it was written perfectly or exactly accurate. Continually writing helped me find ways to get better at it.